Stage 4 Anal Cancer

HillD
HillD Posts: 72 ✭✭
in Anal Cancer #1

For those of with Stage 4, are you on a chemo regiment for life?

I did chemo and radiation when I was first diagnose. During my 6 month scan they found a spot on my liver. I had a liver resection. 

For good measure, they had me complete 4 chemo treatments every 21 days.

i have been given the option to continue with the chemo indefinitely or stop chemo and have scans done every 3 months.

if the cancer comes back, then I would go back on chemo treatments.

Looking here to find out what others have decided when given this choice.

Thanks for your input.

Comments

  • HillD
    HillD Posts: 72 ✭✭
    edited 2021 30 #2

    I did not have stage 4 but if I did I would want at least one and maybe two second opinions from really big centers like MD (content removed) Anderson in Houston and there is also somewhere in California that deals with a lot of advanced anal cancer. You might be able to get consults with places without actually having to travel there, more like they review your records and do a virtual second opinion. Even though it is not a common cancer there are oncologists who specialize in it. Best wishes for your treatment 

  • HillD
    HillD Posts: 72 ✭✭
    #3
    https://acs.vanillastaging.com/discussion/comment/35#Comment_35

    The itching is terrible. It does get better though and then goes away. Hang in there...

  • Nydia2ndaccount
    Nydia2ndaccount Posts: 14 ✭✭
    #4
    https://acs.vanillastaging.com/discussion/comment/36#Comment_36

    I'm visiting from the breast cancer board but have a friend who recommended "spam" lotion for itching. You can find more at: http://spamlink.com.fake

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